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Please read and share my personal story...
I was born in 1976 with congenital hand and arm defects on both sides - Radial Dysplasia, with Polization Surgery on my left hand when I was 3.
Growing up as a child wasn't easy. Very little was known medically about my limb differences, I never received any information, councilling,support from organisations or support medically. And only until very recently found that REACH ORGANISATION existed, Iam so happy and overwhelmed to be a proud member of the organisation and hopefully be a inspiration to others with limb differences.
I have never let anything stop me from backing out of a challenge, trusting my skills, strength and pure grit & determination to prove my own worth along with proving to others that I can Compete in par with them!! Iam now a very proud,hardworking very successful, self employed Hair Stylist, with my own salon. I have excelled and exceeded expectations by FAR!!
I have NEVER let anything stop me from backing out of a challenge, to use it as a excuse or ever say "I can't do that" because of my hands.
My differences has made me into the strong intelligent and independent woman I'am today!!
david your son you have done such a great job through all of this
Hi,my name is Danielle. I am 20 years old and I have bilateral radial clubhands. I have undergone 17 surgeries all before I was in second grade. I never had my arms lengthened but have been given the opportunity many times. My ulna is only about 2.5-3 inches long and of course have only 4 fingers on each hand (which is my favorite part of the condition :) ) I was born without a thumb and my index finger was moved over to create it. I have never had any problems with anything. I hope you can tell David that he will have an extremely normal life. I play sports and even played for 2 years on my college team at Birmingham Southern College. I have played since I was six and never stopped. I taught myself everything. Typing, tying my shoes, writing, literally everything. Well, except I still haven't figured out a way to put my hair up, ha, but hopefully that will come with time. I have only met one other person face to face with the same condition, but I do know how hard it is for the parents. I can't explain how amazed I still am sometimes about what I can do. My handwriting is better than most people's I know, I type extremely fast, and do everything everyone else can do. David, you can do anything. Don't ever limit yourself. I have learned that if you give yourself limits, so will everyone else. Live life without limits and you will exceed everyone's and even your expectations. Feel free to email me for pictures or questions. firstname.lastname@example.org Sincerely, Danielle
My son christopher was born with radial club hand. He is now 4yrs old, he is for sure an gift sent from GOD!!! I want all the moms and dads who have children born with this condition, don't worry nothing stops them from being just a regular kid. I would love to communicate with other parents, my e-mail email@example.com GOD BLESS!!!!!
My daughter Meagen is now 15. We were online searching for information on radial club hands and external fixators because Meagen is scheduled to have surgery on Jan. 26th. She is having it at Riley Hospital in Indpls, IN. The surgeon is going to centralize her left wrist and place external fixator's to lengthen her left arm. Looking through David's pictures brought back many memories for me. Meagen was born with a hole in her heart, missing her left kidney, spine problems, and missing her left thumb and her left arm is shorter than her right arm. When Meagen was 3 the dr moved her index finger and reconstructed it to make it her thumb. She has had her wrist straightened and pins placed twice, but her hand every time has ended back to the bent postion. Thank you for sharing your son's progress. We are very nervous about Meagen's upcoming surgery. Meagen was very surprised to see that there is someone else that has a hand/arm like her. I would love to stay in contact with you and maybe send you some pictures of Meagen. Meagen has been throught alot of surgeries. She is my Angel!
We will keep David in our thoughts and prayers:)
bernadette a lewicke
David, I absolutely loved these photos. It's a wonderful way to share you favorite times with us. Thank you for the laughter and warmth it is so you and your family. Sincerely, Bernadette
The add comment was to quick for me......One Sunday I had a high of 192 hits...Again, Thanks for leading me to pbase....Our grandson is spending a semester in Ireland...sending his pics by picasaweb.google.com/sojournspirit take a look
Absolutely fantastic pics.....Question: What method are you using to eliminate the background?.....When Sue & I get to Longwood I hope to also do some of the close-up work in addition to labeling on the pic.....I'm using Corel Snapfire....
very interesting gallery and I really enjoy the one of grounds for sculpture !
you're truly an inspiration david! thank you to your parents for creating this website..I just gave birth to a baby girl who has similar situation as you. I would like to contact your mom and ask some advise about it.my number is 6303376314, email add firstname.lastname@example.org
thank you so much! be strong! and keep the faith..you're a wonderful child.
the gallery of your son and his progress was amazing and wonderful pictures of a brave little man that could
Hello!! Thank you for sharing your story and pictures!! My nephew was born with the same condition (on his left arm) as your son and it gives me reassurance that he will be able to have a life full of exciting experiences just like your son and any other little boy! Thank you again for sharing and I look forward to checking in on his progress ... Many hugs to your son from myself and my family! :)
first i like to say that you have a very cute little boy, like your son my son too was born with a missing radius bone on his right hand and missing both his thumbs, he's now only 7 months old and wont get any surgeys done untill 2 years old I would like to ask information on the hospital and doctor help your son.
I would like to first say that I think your son is a very brave little boy and a credit to you....
He looks to be so full of life and fun....
Your style and images a great, the gallery of your sons progress and rehabilitation is very moving.
All the best and wish him well...
Thank you for putting your son's pictures and story here. I met a friend of yours while their child was in the NICU where I am a nurse. Upon talking I told him that my 3.5 year old son has Holt-Oram Syndrome and a severely affected right hand and arm, and mildly affected left hand and arm. He is going thru the surgeries as I write this. Thanks again, Kristi
I really like your style. nice variety of images.
Très belle gallerie avec beaucoup de variété
En fantastisk samling, mycket vackert.
Gracias por compartirlas
Saludos desde España
Hello,my name is sharon! I am Ankes' daughter,we looked through your gallery today and we just want to tell you that this is a beautyful gallery and your kids are very blessed to have a parent like you. we wish you good luck through your journey.